So, everything everyone says about the NICU rollercoaster is true. As of my last update, Clark was just trucking along. Then, last week he got a big nasty infection caused by a gram-negative bacteria called pseudomonas. “One of the worst bugs our there” according to his doctor. The day after that, his PICC line malfunctioned and all of the fluids going into it leaked into the area around his lung sending his blood pressure and oxygenation into a tail spin.
The pseudomonas literally had him on the brink of life and death. He was unresponsive for quite some time and having seizures. Needless to say, I didn’t sleep or eat much last week. They were able to drain the area around his lung and his oxygen saturation and blood pressure have greatly improved. As of the last culture, there was no evidence of the pseudomonas, but he will continue antibiotic therapy for at least a couple weeks.
He became so swollen because they had to pump him full of fluids so his blood pressure would come up. He is slowly eliminating those fluids, but it might take awhile. We just got news that his new PICC line was placed, and he apparently tolerated the procedure well. The biggest deal now is for him to be able to rest, not get any new infections, have a good PICC line…etc etc etc.
As I’ve been telling everyone in person, we need every prayer we can get. This is a scary, bumpy ride.
Posted by Simona on February 2, 2010 at 4:25 pm
I’ve been “lurking” for a while and held my breath that your pregnancy would go on as long as possible, and now I’m holding my breath that your little boy fights those bad bugs and gets stronger everyday. You are both in my thoughts and prayers.
Posted by Jennifer on February 3, 2010 at 12:31 am
Your story has been so inspiring to me and it is amazing to see your little boy. He is in my thoughts and prayers. I hope the roller coaster NICU ride gets better every day.
Posted by Amber on February 3, 2010 at 4:25 pm
I just said a prayer for you and your BEAUTIFUL baby!!! I can’t wait to hear another update because I know it will be good! I can’t imagine the situation your in but I will be there soon too! Don’t worry Brandee as God is GOOD and PLEASE keep your faith and KNOW that your little one is going to be just fine
God Bless you and your baby & Im here if you need to talk.
Posted by Beth on February 7, 2010 at 9:37 pm
Hey Brandy,
Sorry you had a rough infection and few weeks. Hang in there. You guys are in our prayers too. Keep in touch. Peace,
Beth
Posted by Beth on February 14, 2010 at 3:15 pm
How are you guys?